A mama's blog to her youngest son as they navigate his journey through congenital heart disease, large family life and living with JOY.

Sunday, August 3, 2014

Sunday


No more pacing wires! No chest drains! 
You have been a SUPER STAR our boy. They've done such a great job that you may even be out of hospital as soon as tomorrow. 

You're still in a lot of pain, moving from, and to laying is a struggle and you go stiff as a board and your whole body shakes but it doesn't stop you. You even tried to crawl on the floor this afternoon after we moved to our own room! That didn't go too well and ended in tears but in typical Muzzie fashion, it had to be you that decided where you stopped. You don't allow anyone to let you define where you can go or push towards. 

When they removed your wires and drains, they souped you up on morphine and a sedative. We weren't allowed to stay as it is a pretty awful procedure understandably - the pacing wires were lodged in your heart muscle and the drains were sat in your abdomen to remove the excess blood and fluids from building up. Anyway, as we came back, you were off with the fairies and chatting away at the top of your lungs. Dad fed you lunch and you insisted on slapping his arm with every mouthful all while swaying back and forth. We got a very good look into your future as an angry drunk hahahaha!!!

You had an echo, ECG and chest xray which all looks fabulous, you even escaped the ward in a pusher for a while and thought that was pretty cool. 

I am hoping for a good nights sleep tonight in our own room and away from hourly obs and screamy babies and machines. With an extra hope for a leave pass tomorrow!!!

Look at that tiny scar!! You may have to fall off a few more motorbikes to get a really impressive one for the girls 😜

Saturday, August 2, 2014

Day Two Post Op


This 24 hours has been hard work. We had a really long night of waking to you in pain and resettling. Every time I would get you to sleep, the baby opposite us would wake up and scream or set off all her alarms and we would have to resettle all over again. You don't want to eat or drink and haven't had any wet nappies so they've hooked you up to some fluid to help re-hydrate you. 




You woke up later on this afternoon and had a sit in a specially designed seat, and had a tub of yoghurt which was fantastic! You then got tired and had a bit of a low oxygen moment so you're back in bed and snuggled up. Everytime you get moved your heart rate goes through the roof, so the nurses are giving you one off top ups of morphine as they turned your infusion down last night in the hope that you'd wake a bit more to feed.